class: center, middle, inverse, title-slide # Day Twenty-Four: Data Privacy ## SDS 192: Introduction to Data Science ###
Lindsay Poirier
Statistical & Data Sciences
, Smith College
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Spring 2022
--- <iframe width="560" height="315" src="https://www.youtube.com/embed/tivCK_fBBfo?start=327" title="YouTube video player" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe> --- # Timeline of Healthcare Privacy Protections * 1996: Healthcare Insurance Portability and Accountability Act (HIPAA) signed into law * 1999: HIPAA Privacy Rule put out for public comment; first issued in 2002 * Establishes standards to secure "protected health information" * Limits uses and disclosures of health information * Establishes individual rights over protected health information --- # Survey 1 Link ![](img/qrcode_docs.google.com.png) ### [https://bit.ly/3wC3iAC](https://bit.ly/3wC3iAC) --- # Survey 2 Link ![](img/qrcode_docs.google.com2.png) ### [https://bit.ly/3tBE4QM](https://bit.ly/3wC3iAC) --- <iframe width="560" height="315" src="https://www.youtube.com/embed/XhcCGSo16xM" title="YouTube video player" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe> --- # Data Privacy Online * 2012 study at Carnegie Mellon showed that: * The median privacy policy is 2,518 words long * The average user takes 10 minutes to read a privacy policy * The average user encounters 1,462 policies a year * It would take 76 8-hour work days to read all user agreements in a year * ...i.e. over 3 months per year of work time --- # Thinking Ethically * Rights Approach: Prioritizing individual rights * Justice Approach: Distributing benefits and risks fairly * Utilitarian Approach: Weighing good vs. evil * Common Good Approach: Prioritizing policies and structres that benefit all community members * Virtue Approach: Pursuing moral ideals > Thinking Ethically: A Framework for Moral Decision Making. Velasquez, M., C. Andre, T. Shanks, and M. J. Meyer. Center for Applied Ethics, Santa Clara University. ---